A Natural Approach To Health
Living With Usher Syndrome
I had a question the other day about Usher syndrome.
Usher syndrome is an inherited condition characterized by hearing impairment and progressive vision loss.
The vision loss is due to retinitis pigmentosa (RP), a degenerative condition of the retina, and usually appears during adolescence or early adulthood.
Balance may also be affected.
Symptoms vary from person to person and progress at different rates.
Researchers are studying causes and potential treatments for Usher syndrome.
Excellent progress in research has been made recently.
There are at least 3 different forms of Usher syndrome.
People with Usher syndrome type 1 are usually born with severe hearing loss and experience problems with balance.
The first signs of RP — night blindness and loss of peripheral vision — usually appear in early adolescence.
In Usher syndrome type 2, newborns have moderate to severe hearing impairment.
Symptoms of RP typically start shortly after adolescence.
Visual problems progress less rapidly than in Usher type 1 and hearing loss usually remains stable.
A rarer third type of Usher syndrome was documented in 1995.
Children with Usher type 3 are usually born with good or only mild impairment of hearing.
Their hearing and vision loss is progressive, starting around puberty.
Balance may also be affected.
Hearing loss in Usher syndrome is due to a genetic mutation affecting nerve cells in the cochlea, a sound-transmitting structure of the inner ear.
The same genetic defect also adversely affects photoreceptor cells in the retina, leading to vision loss.
The retina is a delicate tissue in the back of the eye made up of light-sensing photoreceptor cells.
These cells — also known as rods and cones — are responsible for converting light into electrical impulses that transfer messages to the brain.
While there are no treatments for Usher syndrome, intensive research is underway to discover the causes of, and treatments for, all types of the disease.
To deal with Usher syndrome it’s beneficial to:
*Drink 6-8 cups of purified water daily.
*Increase your intake of essential fats (flax oil, Omega-3 oils, etc.).
*Consider herbs such as Eyebright and Bilberry.
*Use Enfuselle products.
*Try warm compresses (can use moist, warm regular tea bag).
*Have a diet rich in bioflavonoids (berries, colorful veggies, etc.).
*Eliminate toxic cosmetics, eye care, and personal care products.
*Eliminate toxic household and laundry cleaners.
*Eliminate poor air quality, which could be irritating.
*Eliminate chlorinated shower/bath water, which could be irritating.
*Eliminate “hidden” allergies or sensitivities, which may aggravate your eyes.
*Avoid free radical damage; check heavy metal toxicity.
*Eliminate smoking.
*Eliminate hydrogenated or trans fats, sugar and white flour.
Recommendations:
It’s essential to use: Vita-Lea, Protein, CarotoMax and/or FlavoMax, Alfalfa, B-Complex, Vitamin C, Vitamin D, Zinc.
It’s important to use: Optiflora, CoQHeart, Vitamin E, Mental Acuity, GLA, OmegaGuard, Vivix.
It’s beneficial to use: Herb-Lax, Fiber, DTX, Stress Relief Complex, NutriFeron.
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email: lenay@dickandlenay.com
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