Living With Marfan Syndrome

A Natural Approach To Health

marfan

Living With Marfan Syndrome

I had a question the other day about Marfan syndrome.

Marfan syndrome is an inherited disease affecting your connective tissue, which provides the strength, support, and elasticity to tendons, cartilage, heart valves, blood vessels, and other vital parts of your body.

For people with Marfan syndrome, the connective tissue lacks strength because of its abnormal chemical makeup.

The syndrome affects your bones, eyes, skin, lungs, and nervous system along with your heart and blood vessels.

The condition is fairly common, affecting 1 in 5,000 Americans.

It’s found in people of all races and ethnic backgrounds.

One of the biggest threats of Marfan syndrome is damage to the aorta, the artery that carries blood from your heart to the rest of your body.

Marfan syndrome can rupture the inside of your aorta, causing dissection that leads to bleeding in the wall of the vessel.

Aortic dissection can be deadly.

Surgery may be required to replace the affected part of the aorta.

Some people with Marfan syndrome also have mitral valve prolapse, a billowing of the heart valve that may be associated with irregular or rapid heart beats and shortness of breath.

It may require surgery.

Marfan syndrome is caused by a change in the gene controlling how your body makes fibrillin, a necessary part of connective tissue contributing to its strength and elasticity.

In most cases, Marfan syndrome is inherited from a parent, but 1 in 4 cases occurs in people with no known family history of the disease.

It occurs equally in men and women, who have a 50% risk of passing on the gene to their children.

Marfan syndrome is present at birth, but may not be diagnosed until adolescence or later.

Everyone with Marfan syndrome has the same defective gene, but not everyone has the same symptoms to the same degree.

People with Marfan syndrome may have:

>A tall, thin build.

>Long arms, legs, fingers, and toes and flexible joints.

>Scoliosis, or curvature of the spine.

>A chest that sinks in or sticks out.

>Crowded teeth.

>Flat feet.

In the past, the average age of death for people with Marfan syndrome was 32 years old.

Today, with the help of early diagnosis, appropriate management, and long-term follow-up care, most people with the disorder live active, healthy lives with a life expectancy similar to the general population.

To deal with Marfan syndrome, it’s beneficial to:

*Drink 6-8 cups of purified water daily to hydrate and flush toxins.

*Review my post on keeping clean on the inside.

*Breathe easier; purify indoor air.

*Increase essential fats (flax oil, olive oil, Omega-3 oils).

*Consume a 50% raw food diet:  lots of fresh, raw fruits and veggies (organic when possible).  Include fresh juicing.

*Consider liver and colon cleanses.

*Increase deep breathing, relaxation, stress management and energy techniques.

*Increase fresh air, sunshine, connect to nature, adequate rest.

*Deal with any underlying emotional issues.

*Ensure regular (2 per day) bowel movements.

*Decrease toxic exposures of all kinds.

*Investigate and eliminate “hidden” allergies/sensitivities.

*Decrease or eliminate any and all hydrogenated, trans fats, and deep-fried foods.

*Decrease or eliminate sugar-laden foods, white flour products, simple carbs.

*Decrease or eliminate processed, instant, chemical-laden, “lifeless” foods.

*Decrease or eliminate smoking, alcohol, coffee, soda pop, processed juices.

*Become educated about all possible side effects and detrimental influences of any medications or treatment procedures you are taking or considering.

*Research and address underlying Candida issues.

*Avoid MSG and artificial sweeteners as they are neurotoxins.

*Consume plenty of fresh (not canned) pineapple and/or papaya (anti-inflammatory properties).

*Avoid nightshade vegetables (eggplant, tomatoes, potatoes, peppers).

Recommendations:

It’s essential to use:  VitaLea, Protein, NutriFeron, Alfalfa, Optiflora, GLA, OmegaGuard, Lecithin, VitalMag, Vitamin D, EZ-Gest.

It’s important to use:  B-Complex, Joint Health Complex, Vitamin C, Vitamin E, Garlic, Zinc.

It’s beneficial to use:  Vivix, CarotoMax and/or FlavoMax, CoQHeart, CorEnergy, Fiber, Immunity Formula, 180 Energizing Tea.

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email:  lenay@dickandlenay.com

PS:  If you have any questions about Marfan syndrome, and would like to know how supplements can help, give us a call at 715-431-0657.  We’re here to help.


 

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